A Culture of Health

Access to Chronic Pain Management including Life Saving and Quality of Life Giving neurosurgeries for rare diseases

Whether a person lives with Chronic Pain from a hereditary condition like EhlersDanlos Syndrome and either of its comorbid conditions where life saving treatments and quality of life giving surgeries may be required, or if they live with acquired Chronic Pain, as a disease in its own right, there are gaps in access to care that go well beyond surgical treatments.


The federal government is not recognizing chronic pain as a national health priority, despite the prevalence and the Opioid Crisis, which has in effect railroaded the entire message about mental health associated to chronic pain and dependency for quality of life, as opposed to their focus on addictions.


People Of All Ages Are Suffering and WE must GIVE VOICE to get Chronic Pain and rare conditions like EDS on the government agenda as a national priority!


- Health Canada Calendar of Health Promotion Days for 2017, and in Nov. there is no mention of Pain:



In 2015-13 listed in Nov. the National Pain Awareness Week:



Stats: 1 in 5 Canadians suffer from chronic pain, or 20% of the population. Please see below Managing pain by proper opioid prescribing is now in danger.


“Dr. David Williams, Ontario Chief Medical Officer of Health, gave a talk later that day stating that in Ontario prescribed opioids were the real problem. This information was inaccurate, and unfortunately resulted in an unprecedented crackdown by the Ontario College of Physicians and Surgeons on 84 Ontario pain physicians found to have been prescribing higher doses of opioids …They will do nothing to stop the overdose deaths and will not curb the opioid epidemic. And these actions have already had a very negative impact on chronic pain patients…There have been reports of desperate patients trapped under the new, tougher prescribing policies, and even reports of a few suicides …One in five Canadians suffers from chronic pain – 20 per cent of the population. Half of these, that is 10 per cent of all, have pain of such severity that they cannot work, play or sleep much. The cost to society of chronic pain equals that of cancer, heart disease and AIDS/HIV combined.”




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160 up votes
11 down votes
Idea No. 175