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A Culture of Health

Access to Chronic Pain Management including Life Saving and Quality of Life Giving neurosurgeries for rare diseases

Whether a person lives with Chronic Pain from a hereditary condition like EhlersDanlos Syndrome and either of its comorbid conditions where life saving treatments and quality of life giving surgeries may be required, or if they live with acquired Chronic Pain, as a disease in its own right, there are gaps in access to care that go well beyond surgical treatments.

The federal government is not recognizing chronic pain... more »


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